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The National Stroke Foundation commissioned this research because we want to develop and implement strategies that will improve life after stroke for nearly 350,000 stroke survivors and their carers and families.
This report found stroke survivors continue to struggle to regain their health after a stroke and have difficulty finding information to help them recover.
Stroke survivors and carers went to Parliament House on 15 August to ask MPs to walk in their shoes.
State Stroke Associations and the National Stroke Foundation have jointly surveyed stroke support groups to find out what stroke survivors say they need and what they are getting. This first comprehensive report of its kind clearly shows that stroke support groups with limited resources are making an important contribution to the well-being and recovery of survivors but they can only reach a small percentage of people in need. The report also examines Australian and international peer support models.
This project is about real people who have entrusted their personal stories to us in the hope that their experiences would be used wisely to implement improvements for our people in provision of stroke services.