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Lifestyle factors impacting upon medical conditions

June 20th, 2012

Tai Chi Group

Medical conditions, illnesses and injuries can place added strain on our already at times stressful lives. When we have a medical condition, it usually places limitations on our capabilities and causes disruptions to our lifestyle. These limitations and disruptions can range from simple restrictions and changes to our normal routine through to major changes to our basic living pattern and lifestyle, including areas of diet, work, family, recreation and leisure.

In managing medical conditions there are several factors related to our lifestyle that can impede our recovery or cause an increase in symptoms. These factors include worry and anxiety, stress and tension, diet and exercise, sleep, and social support.

Negative thinking – worrying

The problem of worrying

Worrying or negative repetitive thinking about possible adverse situations is one of the most destructive and harmful ways of thinking. People who worry a lot tend to experience high levels of anxiety and tension that adversely affect they physical health. This can add further complications when combined with a medical condition.

Reduce worrying

Trying to stop worrying about things can be a seemingly impossible task. Your psychologist is highly skilled in this area, having been trained extensively in the management of anxiety and worry. Some initial strategies to get you started are outlined below:

When you find yourself worrying about things, don’t try to stop yourself initially but rather systematically write down the likely consequences or concerns on a piece of paper. Make sure that in doing this you not only write down the possible negative outcomes but also the positive outcomes, no matter how likely or unlikely. Next, look at each scenario and think about any possible good points, and remind yourself that thought you may not like it you can and will be able to cope.

If you are lacking any information about issues (e.g. prognosis or likely outcomes and timeframes of medical conditions) then pursue further information and education through appropriate sources (e.g. medical or clinical specialists).
Try to assess realistically your worries and develop other areas to think about. Find a good friend or talk to (or better still, see your psychologist) to pursue this process.

Increase the amount of activity and variety in each day to provide other things to focus on, such as reading, walking, watching a movie, listening to music or any other activity that does not advertly impact upon your medical condition.

Stress and tension

Negative effects of stress and tension

Stress and tension refer to physical arousal in the form of muscle tension and contraction. Stressful muscle can be experienced in a variety of areas including the eyes, jaw, neck, shoulders, lower back and abdominal area. Prolonged muscle tension can lead to aches and pains, ranging from mild headaches to stiff back to chronic migraines and muscular spasms and injury.

Reduction of physical tension and stress

Reducing the physical sign of stress through recognising and relaxing muscles in the body is not as easy as it sounds. First, you have to learn to recognise when you are stressed and which muscle group is most tense.

Then you need to develop skills in systematically relaxing all your muscles particularly those that are most tense. This area takes a lot of practise and skills to master, and your psychologist can provide expert training in relaxation and stress reduction. The following information provides some starting pints to assist you in reducing stress and physical tension.

Learn to recognise the signs on physical tension in your body. This is done by stopping and carefully thinking about how all the different muscles in your body are feeling at regular intervals every day. By doing this you will identify the muscle groups that hold the most tension when you are feeling stress.

Practise regular slow and deep breathing. Do this at regular intervals throughout the day, particularly when you begin to feel tense and stressed. As you exhale say the word ‘calm’ to yourself in a soothing manner.

Begin learning to relax. Develop pleasant imagery (e.g. scenery or pleasant memories) and music which you find soothing and calming, and invoke these images and sounds when stressed.

Learn a form of progressive muscle relaxation. This is where you systematically contract and relax all the muscles in your body to induce a strong feeling of physical relaxation. It is generally best to see your psychologist for initial training and instruction in this area.

Diet

Make sure you eat regularly throughout the day. Choose foods that are nutritious and preferably enjoyable to eat. If you don’t feel like eating then continue to nibble at foods you can tolerate. If you are restricted in food choices then make sure that no inappropriate foods are accessible (e.g. throw them away so you can’t be tempted). Also, if possible advise family members of friends of what your diet should be and get them to prompt you regularly.

Exercise

Keeping your body active is essential for both injury prevention and health promotion through the release of body chemicals which assist in making you feel good.

Maintaining activity is vital to promote wellbeing. In many cases, your medical condition may restrict your ability to engage in previously enjoyed exercises. In this case it is vital to learn other alternate exercises and engage in these regularly. See your medical or clinical specialist for advice on which exercises you can do and develop a regular schedule of activity.

Sleep

Ensuring you get enough sleep is critical when you have a medical condition. Make sure you maximise your potential for a good sleep by:

• Minimising naps during the day
• Not consuming stimulants such as tea and coffee in the evenings
• Exercising during the day so your body is physically tired and ready for sleep at night.

Social support

Loss of social support

When you have a medical condition it can often be a stressful, frustrating, isolating and lonely experience. Often when you’re not feeling well your opportunities for social contact are reduced through both your own limitation, restrictions (e.g. unable to work with colleagues or engage in social recreational activities), and lack of motivation.

Getting the social support you need

When you are coping with a medical condition social support has been proven to be an effective form of assistance in maintaining your quality of life. Whist often previously available forms of support such as work colleagues and recreational friendships may not be available, other sources of social support may still be accessible. The following points provide some suggestions for cultivating quality sources of social support and ensuring these needs are met:

Take the time to think about all the possible people you still have contact with and develop plans to contact some and catch up.

When you do have contact with friends advise them of where you’re at and give them some hints on how they can best support you. Remember if you don’t tell them how to support you appropriately, then they’ll never know!

Keep regular schedules of contact throughout the week. Book regular lunches, coffees and catch-ups with people. Plan ahead to avoid unpleasant isolating gaps through the week.

If your available social support is inadequate then think about new sources of support such as support groups, hobby and interest groups and volunteer opportunities. Your psychologist can assist in developing and implementing a plan to explore and develop more social support opportunities for you.

Access social support networks through Get Helpon our website, which provides a list of ways that you can engage with other people in a similar position as you.

Article originally printed in the Synapse the official journal of The.< The Brain Injury Association of Queensland/em>

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2011 Stroke Care Champion Award

December 8th, 2011

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Patrick Groot from Warrnambool in Victoria has won the NSF Stroke Care Champion Award for his dedicated work with stroke survivors and stroke clinicians since 2004. Patrick, a registered nurse, works as stroke liaison and clinical nurse consultant with South West Healthcare in Warrnambool and is also Regional Stroke Coordinator with the Victorian Stroke Clinical Network.

As part of his role as a clinical nurse specialising in stroke, Patrick sees all stroke and min-stroke admissions at Warrnambool Base Hospital, part of Southwest Health Care. He works with survivors, carers and families across the entire stroke care continuum, ensuring seamless transition from hospital to rehabilitation and then home. The region he works in sees on average 110 stroke patients and 50 mini-stroke patients a year.

He is also a leading community educator, running programs to raise public awareness of stroke.

Patrick said he enjoyed working in the area of stroke because of the many opportunities it presented where he could to improve the lives of people affected by the condition.

“I have found that with stroke you have a wonderful opportunity to make a difference to people’s lives,” he said.

“There is a lot you can achieve and I like striving towards the goal of better services.”

Patrick will this year complete his Masters in Health Science, Stroke Specialisation as part of his continuing education in the area of stroke.

His nominator wrote:

“Patrick has worked tirelessly in the southwest region of Victoria improving the lives of stroke survivors and the skills and knowledge of regional clinicians. He has been instrumental in the development of the Southwest Health care stroke unit and thrombolysis service … resulting in being one of the first regional areas in Victoria to have access to these facilities.”

This award is conferred jointly with the Stroke Society of Australia.

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Self Management pilot program Qld 2012

October 13th, 2011

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Self-management programs are recognised as an effective strategy for managing chronic conditions. The NSF has developed and tested an 8 week stroke specific self-management program, with findings indicating that the program is safe, feasible and generates good health outcomes for stroke survivors.

This 8 week education program is co-facilitated by a health professional and either a stroke survivor or carer, often delivered at a venue in the community and runs for 2.5hrs/wk.  Topics covered include;

1.    Introduction to the Stroke Self Management Program.
2.    Sharing the stroke journey.
3.    How does stroke make you feel?
4.    Attitudes to stroke recovery.
5.    Moving towards a healthy lifestyle: leisure activities, social support and financial matters.
6.    Moving towards a healthy lifestyle: working with health professionals.
7.    Moving towards a healthy lifestyle: learning to be stroke safe for life.
8.    “Where to from here”?

The program is for stroke survivors and their carers, including:

•    Survivors with cognitive impairment,
•    Language difficulties and/ or high levels of physical disability
•    18 yrs and over
•    Returning to the community

The self management program is now being trialled in Queensland. Seven sites have been selected to translate, test and evaluate a locally coordinated, locally delivered capacity building model of self-management support to enable local stroke services to deliver the stroke self-management program to the stroke population. Evaluation of those programs will enable the NSF to determine if local implementation of the self management program can be expanded across Queensland and Australia.

The selected QLD sites are: Gold Coast Community Rehabilitation Program, Logan Community Rehab Team, Metro North Health Services Community Based Rehab Team, Rockhampton Hospital, Toowoomba Adult Rehab Services, Townsville Hospital, and Warwick Health service.

For further queries please contact:

METRO

Where: Logan CBRT Metro Sth, 12th Oct 2011 February 2012  Contact: Sarah Patterson 07 3290 8900
Where: Metro Nth CRT, 19th Oct 2011 February 2012 Contact: Perry Judd 07 5433 8789
Where: SiBundall CRT Gold Coast HS Contact: Kim Ferry 07 5667 3512, 14th Oct 2011 February 2012

REGIONAL

Where: Rockhampton Hospital Contact: Annette Horton 07 4932 5100, 21st Oct 2011 February 2012
Where: Townsville Hospital Contact: Ian Meade 07 4796 2370, 12th Oct 2011 February 2012
Where: Toowoomba Adult Rehab Service Contact: Karen O’Rourke 07 4616 6124, 28th Oct 2011 February 2012
Where: Warwick Hospital Contact: Jacinta Fromm 07 4660 3900, February 2012

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Coping with caring

October 13th, 2011

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Managing stress when it feels like the whole world is on your shoulders

Carers have an important and demanding role, and at times stress can feel like a continual part of this. A certain level of stress is normal and even functional in life, however too much can impact in well-being.

Common signs of stress

•    Tightness in the chest.
•    Gastro-intestinal problems.
•    Irritability.
•    Butterflies in the stomach.

Strategies to manage stress

Strategies can make all the difference in moving through these periods of strain. Coping is a process of managing taxing circumstances that contribute to stress. To cope, people use different approaches, including:

  • Internal methods to help reduce the tension and negative mindset associated with stress.
  • Physical strategies to help the body relax
  • Problem-orientated strategies, to directly solve or manage the problem.

You may or may not be aware of the strategies you use, so it is worth taking the time to have a look in your own toolkit. Taking the time to think about the strategies you use may reveal some patterns in your responses to stress and whether these coping methods are helpful.

Questions to ask yourself

How do you respond when faced with stressful circumstances?
Do the strategies you use reduce the physical signs of stress?

Research indicates that the strategies we use to deal with stress are associated with the way we adjust emotionally. What works for the one person may be of no use to another, so experiment with all the strategies you can and stick to the ones that work for you.

The good, the bad and the ugly

Examples of specific coping strategies (whether helpful or unhelpful) include:

  • Avoidance
  • Creating a plan
  • Knowledge seeking
  • Using alcohol or other drugs for relief
  • Learning new ways to cope
  • Sharing your experiences in a support group
  • Soothing self-talk

Some coping strategies are more effective than others. Some may even cause continued or elevated stress, which can lead to depression and anxiety. Examples of unhelpful strategies are procrastinating, ruminating and worrying. Some people feel worrying helps them to manage the situation, but worrying is often an unhelpful strategy causing a person to get stuck in a relentless cycle of stressful thoughts with no solutions. Procrastination, distancing or avoidance also do little to provide positive adjustments to stress, and can prolong stressful problems, add to a negative mindset, and even lead to problems with anxiety and depression.

Knowledge-seeking, planning and directly tackling solvable problems are all positive strategies. However, they are most suited to stressful situations that are already controllable through our actions. When the situation is beyond our control, we need strategies that focus on creating more helpful thinking patterns, such as realistic and rational thinking, and the use of humour. Sometimes it is about using the most appropriate strategies in the right circumstances. In situations you have little control over use of emotional-focuses coping (use of self-talk to calm yourself, positive thinking, and humour) can be more effective. How you perceive the situation is very important, as in the old example of seeing a glass half full or half empty.

Some positive coping tools

  • Schedule and prioritise talks to help with control and looking toward final outcome.
  • Learn all about brain injury to develop realistic expectations on your situation.
  • Source information on community services that that can provide support and resources.
  • Join support groups and go on outings with other carers.
  • Have regular talks with a good listener.
  • Reward yourself or have events to look forward to once tasks are completed.
  • Get family members and friends to help you out with duties/tasks to reduce the burden.
  • Establish a list of your priorities.
  • Learn to recognise and challenge irrational thoughts (eg  “What’s the use? I give up!”)
  • Encourage and assist the person with the brain injury to be as independent and self-reliant as realistically possible.
  • Exercise.
  • Keep a diary.

After more resources or info?

Visit www.carersaustralia.com.au or call them on 1800 242 636 to find details for the cares organisation in your state, for information support and details on support groups.

Acknowledgment:
This article is copied with permission from Synapse; Reconnecting lives – bridge magazine Voc 3. Official journal of The Brain Injury Association of Queensland.

If you have any questions or need support please call StrokeLine 1800 STROKE (1800 787 653)

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Join an Inspired Adventure

June 3rd, 2011

image_climb_4_stroke

Summit 4 Stroke (February 2012)
Cycle 4 Stroke (March 2012)

The National Stroke Foundation has just launched two new amazing Inspired Adventures to raise money for stroke and experience a trip of a lifetime. Climb the world’s highest freestanding mountain, Mt. Kilimanjaro or cycle your way around beautiful Vietnam and Cambodia
- all for a worthy cause!

Imagine waking up touching the clouds with the vast Tanzanian plains beneath you and the smells of the rainforest intoxicating your senses. You’ll climb past fields of maize and potatoes, pine forests and ice fields, glaciers and caves.

You can challenge yourself acclimatising to the altitude as you come closer and closer to reaching the top of the magnificent Mt. Kilimanjaro in Africa in 2012.

The second Inspired Adventure is in March – cycling one of the world’s most beautiful routes through Vietnam and Cambodia. Have you ever started off the day shopping at a floating market in the river, cycled across sand and dirt roads in rugged Cambodia, or walked along rice paddies and small fishing villages?

The Cycle 4 Stroke Challenge will take you into the heart of Vietnam and Cambodia, as you learn about its evolving Khmer history, French colonialism, and uniquely Southeast Asian culture. You’ll see some of the best-known structures on the planet at the famous world heritage Angkor Wat near some of the most commonly forgotten peoples and histories.

Join us on the adventure of a lifetime as you raise money for the National Stroke Foundation’s mission to provide better support and treatment to stroke survivors.

Simply go to www.strokefoundation.com.au/nsfchallenges to find out how you can help make a difference while experiencing a life
changing challenge.

Each Inspired Adventure includes a physical activity for at  least seven days eg. a trek or a cycle. Your challenge is to train, fundraise and prepare for this physical activity!

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Croydon Crafties

February 9th, 2011

scarves

Image thanks to handworkhandcraft.com

Sometimes we let our creative side lie dormant or even think we don’t have one. But art and creativity live in all of us - it is usually a matter of finding the medium of expression that is best suited to us or recognising the artist within and the art without. It doesn’t always mean we are a budding Van Gogh but as Wendy Lyons from the Croydon Stroke Support Group will attest, there is at least a smidgen of talent in every being and, sad as it may be, sometimes it takes hardship or disability to draw it out.

Wendy, who has always had a knack for arts and crafts, started a weekly art session with her stroke support group peers for the simple reason that she believes everyone benefits from artistic self-expression. Wendy has shown how creativity is not just a left or right-side brain phenomenon - and it doesn’t always take two hands. With her group she has learned to adapt certain artistic techniques to make them possible for stroke survivors to perform. Most of this adaptation, Wendy told us, involves adjusting the method to allow for one functioning hand.

One of the group’s best little fundraisers is hand-dyed silk scarves. Wendy sources the light-weight neutral-coloured scarves from a wholesaler in bulk and then buys also wholesale, beautiful French watercolours. She brings them to the group where they mix colours and apply them to the scarves with an eye dropper. It is a small twist but a most effective one: as Wendy explains, you only need one hand to draw up liquid and apply it with a dropper. The scarves are then spread with course rock salt to soak up the excess liquid and then rinsed and left to dry. The results are many-coloured, reflecting the different personalities of the people who have coloured them and are a sure-fire seller at stalls and other fundraisers.

Contact Croydon Support Group http://www.strokefoundation.com.au/friends_of_nsf_vic

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Home Medicines Review

January 17th, 2011

home-medicines-review

Manage your medication to manage your health

Every year, up to 210,000 Australians are admitted to hospital due to medication problems. At least 50 percent of these admissions could be avoided by better medicine management.

What is a Home Medicines Review?

A Home Medicines Review is a free health service funded by the Commonwealth
Government. A pharmacist will visit you at home and review all your medicines. The pharmacist then works with your doctor to develop a plan to manage and record the medicines you take.

By working together they can identify any problems and make sure your medicines are:

• The best treatment option for you
• Suitable and safe to take together
• Taken correctly

Why have a Home Medicines Review?

A Home Medicines Review will help you better manage your medicines. It will help:

• Increase your knowledge about your medicines
• Increase your confidence in using your medicines
• Reduce your risk of an avoidable trip to hospital

The Pharmacy Guild of Australia 2010

If you would like more information please contact your pharmacist or visit: www.askyourpharmacist.com.au

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Debi’s Story

January 7th, 2011

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When 50 year old Debi suffered her first “mini-stroke” in June 2010 she wasn’t sure just what was going on.

“I was driving the car when the left side of my body felt very tingly - very heavy and tired,” she says. “I thought I’d pinched a nerve… the movement was there, but it felt really dull and heavy.”

Debi was unsure what to do. “I wasn’t in any pain but I wasn’t feeling at all right.” What had started as a purely physical sensation became all-encompassing. Debi recalls an “out-ofbody” type experience and pulled over so her partner could drive. “That’s when the tremors in my hand started,” Debi says. “And I felt that my left hand and my left foot were swollen—I didn’t know what was going on.”

Looking back, she says, all the signs were there. Seeing a friend later that afternoon Debi remembers listening to her friend speaking but being unable to take in the words.The whole event lasted about two and a half hours and afterwards, Debi says she felt overwhelmed with tiredness.

A scan showed Debi had suffered a bleed in the brain which led to a transient ischaemic attack, or TIA. A TIA is sometimes called a “mini-stroke” and is often a warning that stroke may occur. The signs are the same as those of a stroke but they do not last as long.

While Debi has made immediate changes to her lifestyle to reduce her chances of a recurrence of a TIA or of a stroke, the emotional aspects of her experience have been more difficult to come to terms with. “I was devastated, suffered depression and I got angry and frustrated… all of a sudden I felt like everything had changed.”

A nurse told Debi about the National Stroke Foundation and StrokeLine—a free service that provides information and advice on stroke prevention, treatment, rehabilitation, recovery and life after stroke.

The service is available to all callers who are affected by stroke and also provides information to health professionals. Through StrokeLine, Debi was able to get some support for the way she felt and she was also referred to the phone peer program where she linked up via telephone with another survivor.

“I felt like I had someone to help me put things in perspective again,” Debi says. “I can ring up when things get a bit too much and it really helps me stay focused.”

If you have a stroke story you would like to share please contact Ebru at:

eyaman@strokefoundation.com.au or call: 03 9670 1000

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A New Communication Support Group For The Apple Isle

December 23rd, 2010

Communication

The new Tasmanian Communication Support Group aims to provide an active means of support and social connection for people with aphasia, their carers and families.

People with aphasia may have language difficulties, in producing or comprehending spoken or written language. The opportunity to improve communication skills and confidence is seen as a cornerstone for members.

Similarly, the support and education of relatives and carers is an important focus for the group. Speech pathologists from the Department of Health and Human Services will be working with the group on a regular basis.

The group discussed some real-life situations that present daily challenges. These range from using the phone, requesting information, understanding numbers, letters or times or talking to strangers.

The group plans to discuss and introduce strategies to improve communication in these situations. While the group is still very new we are delighted to be able to offer another source of support for people with aphasia.

We are pleased to be working in partnership with the Department of Health and Human Services. For more information or to become a member please call Stephen Rue on: 03 6231 4424

For more information please contact the Australian Aphasia Association on:
1800 274 274 or visit: www.aphasia.org.au

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