Comments for National Stroke Foundation

Comment on Understanding emotional lability by DianaK

DianaK — Wed, 16 May 2012 23:05:45 +0000

Hi Heather if there are people close to you that are doing that - share the blog - that may help.

Comment on Understanding emotional lability by Patsy

Patsy — Wed, 16 May 2012 11:26:47 +0000

Great notes indeed!

Comment on Understanding emotional lability by Heather Bertrand

Heather Bertrand — Wed, 16 May 2012 01:51:05 +0000

The hardest part of it is that people can’t seem to ignore it, even when you tell them “I’m ok, it’ll stop in a minute” we are programmed to offer support to someone who’s crying, and people can’t seem to leave you alone even when you explain what’s going on, and that they are only making it worse.

Comment on The Carryit By Alison Bakker by Kim

Kim — Thu, 03 May 2012 01:29:13 +0000

That is a genius invention! That will open the world to so many people - fantastic work Dave!

Comment on “This life is killing me” by Karen Bayly by Bruce McGillivray

Bruce McGillivray — Thu, 26 Apr 2012 22:24:12 +0000

Hi Karen , well done to you for speaking out, I had my stroke in July 2010 and after spending 3 weeks in hospital and then going home to my beautiful partner and our pussycat I started the unknown but long journey to recovery.
While I appear to have recovered well from a physical point of view , it is the mental side of things that I have greatest difficulties coping with. Too much noise, the TV too loud , people driving too fast , just being at the shopping centre having people just going about their normal activities can sometimes be so overwhelming . Sometimes it makes just want to curl up in bed and not face the day.
I have tried to go back to work (I have been self employed for 30 years) but even that gets too much sometimes. I love my role as a stroke ambassador in Perth and I am sure it is what I was meant to be.
I do argue over the lightlest things with my partner sometimes but I am trying to keep a lid on things. Your story just does so much to make me feel better and to know that I am not alone is a great support to me.
Thank You Karen

Comment on Neuroplasticity: The Brain That Changes Itself by Maria Perri

Maria Perri — Fri, 20 Apr 2012 02:30:17 +0000

I’m currently reading this book. I have been waiting for someone to confirm my personal beliefs I’ve had for over 10 years. I now have got to find willing participants to practice CI therapy daily.

Comment on This Wretched Fatigue by Jessi

Jessi — Mon, 02 Apr 2012 16:28:52 +0000

I will be three years out on 4/25/2012 and had to quit the first full time job I’ve worked since then after only 5 months because I was so fatigued and ill. I’m struggling to find a doctor that understands that this is real and not just “depression”. I have done every thing from medication to yoga to try and conquer “this wretched fatigue” (a perfect way to state it) and nothing has worked. I am under 35 and had a pill induced stroke and didn’t go to the hospital for 4 days because I thought that I was just having horrific vertigo and I’m afraid that my lapse in getting treatment may have worsened my ability to, or the quickness of, my getting well. Thank you for writing this. I am seeing the neurologist today and I will be printing this piece out to take with me.

Comment on “This life is killing me” by Karen Bayly by Glen Reigo

Glen Reigo — Sat, 31 Mar 2012 02:32:47 +0000

Good on you Karen !, you inspire me. I must agree that Jim Stynes was a phenomenal bloke; but YOU are YOU, and having met you, and reading about how you have bounced back post stroke, you are in my opinion Super Woman.

Comment on StrokeLine question from Claire by Glen Reigo

Glen Reigo — Sat, 31 Mar 2012 02:21:21 +0000

Good on you Karen !; I agree that Jim Stynes was a phenominal bloke, but you are YOU, and you are no less than Super Woman !!

Comment on “This life is killing me” by Karen Bayly by Sophie

Sophie — Thu, 29 Mar 2012 11:25:27 +0000

As a dear friend of Karen’s, and the mother of a 6 year old who suffered a stroke just before her 3rd birthday, this is such a welcoming story. As parents of a stroke survivor, it is so real to us that the effects of stroke last well after formal therapy stops, but the expectations of those around us don’t. Too often people forget that Harriet has had a stroke as she looks “normal” but, like Karen, her days are that little bit more difficult than ours. As a Mum I need to remind myself of that and not get frustrated at her, but it has also reminded me that I’m not being overprotective by simply being her loudly spoken advocate - someone needs to take on that role and after all she’s been through, I’m delighted it’s me. Well done Karen, we are so proud of you. xxx